We are seeking participants eighteen years of age or older with a form of autism spectrum disorder. Interested subjects must have been raised and received schooling within the United States. Individuals with co-occurring conditions or people who use an augmentative and alternative communication (AAC) device are eligible to participate. Participation in this study will consist of either an online survey or an interview lasting approximately ninety minutes. During the interview or survey, the subject will be asked questions on a range of topics regarding their experiences as an individual with ASD. There are closed-ended questions, but many of the questions are opened-ended to encourage the participant to elaborate on their responses. Parents (or legal guardians) who have an adult child who meets the study’s criteria, but is unable to communicate, are eligible to participate in the study rather than their child. Parents (or legal guardians) will take part in an alternative interview or survey.
The purpose of this study is to gain an in-depth understanding of what life is like for an autistic individual in the United States. We also hope to ascertain if there is a correlation between a person’s education and medical interventions during childhood and their current whereabouts in life. We aspired to use the resulting information to educate the public on the lives of people within the autistic community. We believe that understanding the experiences of these individuals could help alleviate some of the stigma and discrimination autistic people face. The data may serve as the basis for the development of innovative programs that support individuals with ASD. These programs, in turn, could equip these individuals with the supports and attitudes needed to become independent members of society. Please refer to the contact information provided below to learn more.
Researcher Contact Information
Department of Educational Psychology, College of Education, Health and Society