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Family Experiences with Wandering (“FEW”) Study- Research Opportunity

June 4, 2019

|Recurring Event (See all)

An event every 2 weeks that begins at 12:00 am on Tuesday, repeating until July 31, 2019


Dear Parent,

As many parents know all too well, children with autism spectrum disorder (ASD) may be prone to wandering, or “bolting,” away from adult supervision. Our team of researchers at Cohen Children’s Medical Center of New York believes that when it comes to protecting children with ASD, knowledge is power. That’s why we are committed to conducting research that will improve our understanding of wandering and help us learn how to keep kids with ASD safe. But we can’t do it alone. If you are the parent of a child with ASD who wanders, we are asking for your help.

We are recruiting parents of children with ASD who wander to participate in a new, online research study – called the Family Experiences with Wandering (“FEW”) Study — that will last for 10 weeks. This study has been approved by the Institutional Review Board at Northwell Health. Once per week, for 10 weeks, parents who participate in this study will be asked to report whether, and how many times, their child wandered during the preceding week. Any time their child wanders, parents will be asked to record important details about the wandering incident – such as the location, time of day, and duration – in a confidential online system. In total, we expect that these questions will take no more than 15 minutes per week to complete.

By providing information about their child’s wandering behavior, parents who choose to participate in this study will be helping to advance the medical community’s understanding of wandering – including why, where, when, and how often it happens – which may lead to the development of more effective prevention strategies in the future.

If you think that you may be interested in participating, please click the link below to learn more about the study and access the Screening Questionnaire. This questionnaire will allow the research team to determine whether you are eligible to enroll in this study. Please note that completing the Screening Questionnaire does not in any way commit you to enrolling in the study. Before deciding whether you wish to enroll, you will be provided with more information about the study and will be given the opportunity to ask any questions that you may have.

Click the following link to learn more and access the Screening Questionnaire:  https://redcap.northwell.edu/surveys/?s=KTTNAFL77

Thank you for your time and consideration. We share your commitment to keeping children with ASD safe, and we hope that you will join us in advancing this important research. Please feel free to email the research team at [email protected] if you have any questions.

All best,

The Wandering Research Team at Northwell Health


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